MATTHEW LARSEN

It’s hard to really put words to the myriad of emotions I felt when I learned of Andrea Coller’s passing this past week. Mostly, I was angry as hell. She of all people should have been able to beat this.

In so many ways, to so many people, it’s really hard to appreciate the anger and sadness that comes with having such a terrible illness and continual health issues. You live in a world where everyone you know will never fully understand. It’s not their fault or anything. It’s just that, no matter what, they won’t get that you’ll always feel bitter and angry towards the fact that a large chunk of your life was taken away from you for no apparent reason. The reality is, having cancer will never make sense… you’ll never know why you got it, you’ll never know if the treatment is going to work, and you’ll never know if it’s gone for good. The only thing that you can do is ignore that cynicism as much as possible, and live your life.

Living your life gets difficult, though, when you’re faced with constant reminders that cancer as a disease is never going away. You will know other people with cancer; your loved ones, your friends. You’ll watch the news and someone famous will be diagnosed. You’ll be asked to join a support group, donate, walk, etc. You’ll be asked how you’re feeling, and people will judge what you’ve been doing with your life “since your illness”.

It can be a real drag and can make you isolate yourself a bit.

For me, the only person I think I ever really reached out for any kind of cancer-kinship kind of support was Andrea Coller. And it was only because we both were aware that each other existed, really. I talked with her only a few times about it. I think mostly for me, knowing that she was dealing with all of this stuff too, and with a sense of humor and sarcasm about it, was helpful. Her recent essay article in Glamour magazine really exemplifies her spirit while she’s dealing with some pretty brutal experiences. Anyway, it was the way she didn’t want to really do the things that I also didn’t want to do that made me feel at ease, like the touchy-feely support group kind of stuff. Here’s an excerpt from some email correspondence awhile back:

Hi Matt,

Yes, I’ve also heard that we both are in the big-time at PACE _and_ at Dr. Bowers’ office… How ’bout those stem cell transplants, eh? But thankfully, it seems that so far we both have made it out of that particular hell as all right as anyone could…

…Yeah, sometimes I think it would be fun to sit around and trade war stories with other survivors. But most of the time, I practice the fine art of repression. It works out OK, for the most part.

Andrea

For me, just knowing what another survivor is up to, how they are living life, how they, too, just want everything to be ‘normal’ is enough. I don’t need to recall all the details of treatment, hospitals, medical procedures, and how it felt during treament. I try as hard as possible to not ever think about that stuff. And the further out I get, the more the days just melt into each other, and I’m blissfully not as aware that I am a ‘cancer survivor’.

I’m truly devastated to learn of Andrea Coller’s passing. It’s just a very difficult thing to deal with. At the core of all this is the first-hand knowledge of the hospitals and doctors and many of the ugly things that go along with people trying you fix you. But especially, I just know how much of an imprint Andrea’s life made on my life– and I wasn’t very close to her. To lose someone to similar health issues that I have, so far, survived doesn’t seem fair somehow.

When she was playing open mic nights at Fire and Water back when me and Steve Biegner were playing there too as Smokejumpers, she would light up the crowd. Years later, her performances at P.A.C.E. and her open mic night hosting duties made a different crowd adore her.

These are the types of things that trump everything else. She was just a great kind person living her life, who just happened to be dealing with cancer. And I know is that I will truly miss the calm of knowing that she was ‘around’. What it means in my own life, I haven’t quite figured out yet. We’re a compartmentalized group, just like a lot of groups… ‘people who’ve dealt with cancer’, ‘cancer survivors’. But no-one should ever pretend that we all have the same shit to deal with.

To quote her, I guess “…sometimes I think it would be fun to sit around and trade war stories with other survivors. But most of the time, I practice the fine art of repression. It works out OK, for the most part.”

Everyone will miss what you brought to the world, Andrea.

This past Wednesday, Kristen and I stayed at the Sheraton in Boston’s Back Bay. My mother was nice enough to let us use her reward points, so we wound up staying in a pretty awesome suite on the 24th floor. For dinner, we went to Brasserie Jo. I had the steak frites. Kristen had the Chicken Coq Au Vin. Absolutely delicious. Seriously. Though I knew I would enjoy it when they brought each of us a baguette. I cannot express how much I love bread. It was nice to be able to chill out in Boston the night before my appointment on Thursday at Dana Farber.

It was a regular checkup of all my Hodgkin’s related stuff. I wasn’t looking forward to it, especially since my recent PET scan showed a slight enlargement of a lymph node in my neck. For weeks before my appointment I was pretty worried that a recurrence may have been on the horizon. Luckily, after they examined the scans at length, they determined that it wasn’t much of a cause for concern. They’re repeating scans in April just to be on the safe side. I could have just had a sore throat that day or something like that when I had my first PET scan. I can’t tell you how relieved I was.

In general, these regular checkups and doctor’s appointments are strangely more difficult for me now since they’re less frequent. I guess it’s the whole ‘out of site– out of mind’ mentality. When I go to these things, I’m reminded of all the difficult things I’ve been through. Now that I am so happy and in such a good place in my life, it’s easy to put those things out of my mind mostly. Anyhow, it was Kristen’s first visit to Dana Farber, so I’m sure it was weird for her but also good to get a new perspective on my health-life.

I’m just glad we got to offset the not-so-fun stuff with the hotel and the fancypants dinner the night before.

Oh, and on our way home, we stopped at the ‘rich people mall’, the Atrium in Chestnut Hill. We strolled around places like Restoration Hardware, Pottery Barn, J. Crew, Anthroplogie, and other such stores. And of course, there was a Cheesecake Factory, so we wound up eating there for dinner. It was surprisingly delicious.

Oh, and Kristen picked up a TheKnot magazine, which had 800 wedding dress ideas. But what will I wear?!

I was looking at my site one day and began to realize how seemingly quickly things become out of date and never get updated. It happens to everyone, and I suppose I could tell you that it won’t happen here since I have a fancy new blog setup so it makes it easier for me to post things. I suppose I could pledge to keep this updated as frequently as possible, not acknowledging the inevitable slackage that will creep up from time to time.

Instead I’ll just post about how I’m kind of excited about the whole blog setup. Ever since I started working at MassLive, and since meeting my lovely fiancee Kristen, I’ve been keen to the idea of starting one, but just didn’t have the time to explore it. Finally, I did.

So here we are. As I get into the swing of things, I hope some of these posts aren’t total snoozers.